Brain on Fire. My Month of Madness. by Susannah Cahalan. ebook Brain on Fire is the powerful account of one woman's struggle to recapture her identity. An award-winning memoir and instant New York Times bestseller that goes far beyond its riveting medical mystery, Brain on Fire is the powerful account of one woman’s struggle to recapture her identity. When twenty-four-year-old Susannah Cahalan woke up alone in a hospital room. Editorial Reviews. From Booklist. *Starred Review* In this fascinating memoir by a young New .. Download Audiobooks · Book Depository Books With Free Delivery Worldwide · Box Office Mojo Find Movie Box Office Data · ComiXology. Thousands of.
|Language:||English, Spanish, Hindi|
|ePub File Size:||21.56 MB|
|PDF File Size:||14.80 MB|
|Distribution:||Free* [*Free Regsitration Required]|
Brain on Fire by Susannah Cahalan - NOW A MAJOR MOTION PICTURE STARRING CHLOË GRACE MORETZ An award-winning memoir and instant New. An award-winning memoir and instant New York Times bestseller that goes far beyond its riveting medical mystery, Brain on Fire is the powerful account of one. Brain On Fire: My Month of Madness eBook: Susannah Cahalan: bvifacts.info: Kindle Store.
Days earlier, she had been on the threshold of a new, adult life: Now she was labeled violent, psychotic, a flight risk. What happened? Abilitato Miglioramenti tipografici: Abilitato Scorri Pagina: Abilitato Lingua:
One issue, which Cahalan describes, is that anti-NMDA-receptor encephalitis is associated with a significant amnesia for the period of acute illness. This paradox gives readers fascinating insight into the way that people constantly construct their own perceptions. Brain on Fire is also very effective as an illustration of the diagnostic odyssey of an individual with an unknown disease. Cahalan was diagnosed and treated only after weeks of progression, after finally being admitted to a specialized neurology service in a tertiary care center—and even at that center, the tale is presented as if only one specialist was familiar with the condition.
Viewed from that perspective, Cahalan could be considered lucky even to have received the correct diagnosis. The author does not condemn physicians unaware of the diagnosis, as she recognizes the difficulty in staying abreast of new developments in medicine. The book is dedicated to undiagnosed patients, a group that goes far beyond anti-NMDA-receptor encephalitis.
Even in the age of whole-genome sequencing, the medical community lacks much information about even common diseases, much less rare ones. Good news is that the NIH Undiagnosed Diseases Program is currently undergoing revision and expansion, in recognition of the number of disorders that remain unknown and might become recognizable. In some ways, Cahalan oversimplifies the medical and scientific communities.
For example, she essentially attributes her diagnosis and the original discovery of anti-NMDA-receptor encephalitis to single individuals. This presentation fails to recognize the manner in which medical care is delivered by interactive teams and the collaborative way that science moves forward. But the perspective presented provides insight on how people outside the medical and scientific communities view their work, and suggests that there is a need for broader education on the collaborative nature of the scientific and medical fields, particularly as the available time for such collaboration decreases.
Another misperception reflects the increasing incidence of anti-NMDA-receptor encephalitis. As Cahalan notes in her discussions with neurological experts, it is easy to speculate that this disorder might be responsible for many episodes of demonic possession or mental illness throughout history. However, this speculation does not match present medical observations, as untreated anti-NMDA-receptor encephalitis is an almost uniformly debilitating disease; scientists have identified few spontaneous survivors who did not have ICU-level care in the acute period.
Thus, it seems unlikely that this specific disorder caused such reversible events throughout history, though an as-yet-unappreciated variant conceivably could have done so. National Center for Biotechnology Information , U. Journal List Cerebrum v. David Lynch , M. Author information Copyright and License information Disclaimer. Review available online at http: It sure seems like a lot of the weapons being used today are as old fashioned as spears and tomahawks.
She was diagnosed by serious professionals as having partied too hard, as being bipolar, schizophrenic, psychotic and probably a few more fun things from the DSM manual. Her story is almost like a mystery, with clues, red herrings, suspects, good guys and bad…well, there are not really any bad guys, just uninformed medical pros. Good guys include a bf made of solid gold, and several of the docs who look into her odd case. Dad stands pretty tall as well. One way you can tell the pioneers is by the arrows in their backs.
In terms of what Cahalan is finally diagnosed with it is clear that many of those pioneers did not survive. There is a point in the progress of this particular disease yes, they do find what ails her beyond which the damage is too severe to step back. Cahalan comes through, damaged but recovering.
So what are we to make of all this? She had to struggle to reconstruct events from her life, events for which she was present, in which she was even an actor, but events for which she retained no memory. Scary stuff. Her journey through the medical Indian territory was frightening and her arrival at Fort Diagnosis was uplifting. We learn something new about the world and the information has implications for a wide swath of maladies.
Might it be that many who are diagnosed with autism, say, or schizophrenia, might have a treatable, biological, as opposed to psychological, disease? It might. Consider your horizon expanded. One crucial element here is the personality of the narrator. How we feel about Cahalan can affect our reaction to the book overall.
Here we run into bit of a teratoma. I did not feel much for this particular person. While she is certainly bright, and writes well, I got the impression that she was not exactly the best possible human being. During one of her episodes, Cahalan threw repeated fits in a car, while with her family. It was like a spoiled child on steroids and meth. It is an appalling scene, yet seriously mitigated by the fact that this person is not well.
However, it does make one wonder about how the manifestations of this disease reflect the underlying person.
Her mother later recounts: You walked into a restaurant and demanded food. Just demanded it. Cahalan does offer a bit of perspective, with info on some other people who have been diagnosed with her disease. But there was nothing there indicating a correlation, or not, between disease-driven behavior and the personality of the sufferer.
I suppose it should not matter. Even obnoxious people do not deserve such slings and arrows.
To Hell and Back Review: Brain on Fire: My Month of Madness
One aspect of this disease is that it can seriously impair memory, removing some that are there, and making it difficult to impossible to form new ones. Even though I was not all that taken with Miss Cahalan as a person, she is a good writer with a fascinating tale to tell, one with implications far beyond her personal journey. I will not soon forget it. Teratoma — the reason for using that particular word is that many sufferers of Anti-NMDA receptor encephalitis often have had such tumors prior to onset of the disease.
CS did not. I fearlessly cut and pasted the ff from Wikipedia - A teratoma is an encapsulated tumor with tissue or organ components resembling normal derivatives of all three germ layers.
The tissues of a teratoma, although normal in themselves, may be quite different from surrounding tissues and may be highly disparate; teratomas have been reported to contain hair, teeth, bone and, very rarely, more complex organs such as eyes, torso, and hands, feet, or other limbs. View all 44 comments. Nov 07, Nancy rated it it was amazing.
I rarely read memoirs. It is a rare and gifted author that can objectively describe a personal event without infusing it with strong emotions. Perhaps Susannah was able to accomplish this huge feat due to the simple fact that she was unaware of herself much of the time that her brain was inflamed.
She begins with the first noticeable symptom; a couple of bed bug bites tha I rarely read memoirs. She begins with the first noticeable symptom; a couple of bed bug bites that were probably hallucinations and escalates from there. Some of it remembers in bits and pieces right up until her major seizure which wasn't a pretty picture, nor did she try to paint it as such. Rushed to the hospital, her mind is blank for the next month until she is correctly diagnosed and begins the slow healing process.
I found Susannah's story absolutely fascinating. She fairly balances her experiences with simple medical terminology, cites doctors notes and tries to piece together a chronological picture of her sickness, interactions with those who love her, and hospital video. She describes her intense and insane mindset without previously establishing her basic personality. This is an excellent strategy as her writing style and brief "normal" clearly defines her as an intelligent and engaging young woman.
The fact that she is confident enough to allow the reader to arrive at this conclusion endeared her to me all the more by trusting the reader. Although I recoil when an author writes a book with an agenda, Susannah's agenda is simply awareness of the possibility that mental illness can be physiological in nature, caused by a virus or bacteria, changing the personality of a person to such an extreme that mental illness is diagnosed and the person spends the rest of her life in an institution.
Susannah was greatly blessed by intersecting with a doctor who had recently made the discovery of this malady. It's an amazing story and Susannah is an extremely gifted writer. This reader was stunned to do the math on Susannah's age. She was 24 when she fell victim to this illness and no more than 27 or 28 when she reconstructed the time period and wrote the book.
I can't wait to see what else she publishes. View all 6 comments. Feb 19, Jen McLeod rated it it was ok. You could probably call this a great piece of investigative reporting. Unfortunately for me, it was instead labelled as a memoir, leaving me feeling exasperated and mislead. I guess I was hoping for something akin to the more enjoyable memoirs that I've read I'm thinking The Glass Castle by Jeanette Walls, or even Memoirs of a Geisha by Arthur Golden, which is not so much memoir as it is fiction based on memoir - beside the point.
This was more like an excruciatingly long newspaper article, ch You could probably call this a great piece of investigative reporting. This was more like an excruciatingly long newspaper article, chocked full of too much medical jargon and theory to be enjoyable. I was really hoping for something witty, funny, anecdotal, interspersed with childhood memories maybe. Instead, it's about the most linear, dully-written thing I've read in a very long time.
The story actually, it's more of a soulless recording of events starts with the onset of symptoms - we have no context for what the writer was like prior to this event in her life, and thus lose some of the implied contrast.
The lack of description in the book I'm a big fan of Hemingway's iceberg theory, but it's based on the assumption that there is a common human experience on which one can infer things that are not written - having a completely debilitating brain disease is not a part of that common experience, thus we need things spelled out for us leaves a big divide between writer and reader.
One of the things that I was always told about good writing is that the writer should show rather than tell. This book is all telling. Having just finished this in a day and a half because I wanted to move on to something more enjoyable I'm really confused by the 4. This means it's been set between "I loved it" and "it was amazing". That just seems like a really big stretch for me. The excess of sentence fragments alone should disqualify it from being anything above a 3-star rating.
The book markedly lacks any sort of style or writer's voice. It's very I noted down two sentence that I thought were a bit ridiculous and more or less summed up the whole book for me: When speaking about her mother, "She was terrified of even hearing about cancer on the radio Otherwise, she is describing an irrational fear of the radio.
What a horrid sentence. I'm so glad to be finished this. View all 73 comments. I used to occasionally watch a show called Mystery Diagnosis where someone would come down with the strangest disease with the weirdest symptoms. They would go from doctor to doctor being misdiagnosed every time. In the end, a brilliant doctor who specializes in the strangest ailments would correctly diagnose the patient with a rare disease that affects 1 in a billion people.
This book is basically an episode of that show. Also, I am told that the show House was like that, but I never saw it. The I used to occasionally watch a show called Mystery Diagnosis where someone would come down with the strangest disease with the weirdest symptoms. The plight of the author is enthralling but scary. Everything that happens to her will make you realize how easily our normal lives could be turned upside down.
This is not a book for the queasy or someone with hypochondriac tendencies. The descriptions in the book are raw and terrifying. One other thing I will caution, not really good or bad, it just depends on your taste, is that the book is very clinical. After reading I almost feel like I could go out and diagnose this condition myself.
If you prefer your non-fiction in layman's terms, this may not be the book for you. If you like mysterious and terrifyingly true tales of the human body turning against itself, and the plight of the innocent soul within, I expect you will find this book very intriguing. View all 14 comments.
Interesting and terrifying read. View 1 comment. Nov 26, Petra Eggs rated it liked it. Diagnosed schizophrenic.
Brain on Fire: My Month of Madness
Psychotic or the victim of the greed of drug companies? The last book I read was Stir: It was very so-so but the author's appealing personality added much to the book. I hoped that Brain on Fire, in the same genre, would be better. The author's personality didn't shine through, but this might have been a fact that she lost herself with her illness. The illness, a rare, auto-i Diagnosed schizophrenic. The illness, a rare, auto-immune disease of the brain seems to mimic schizophrenia and you could see this when it was full-blown.
However, what was not clarified was when the author was nuts and when she was seriously ill. Before her illness it becomes apparent th at she might go to work clean and neat, but her apartment is filthy and she is a hoarder. Her first symptom was that of seeing a bed bug bite on her arm given the state of her apartment you could see that her sheets probably hadn't been washed in months but no one else could see the bed bug bite.
I did wonder about her boyfriend, why he had enabled her to live like a mentally-ill person before she actually was. Why hadn't he cleaned the place if she was incapable of it? Or got in a cleaner, we are talking very wealthy people here. The author makes an excellent point in that many people living with 'schizophrenia' might actually have the same, easily curable brain disease, but the process of diagnosis was very expensive, although now one would hope that there are protocols to follow to rule it out before labelling someone psychotic-for-life.
This is where I take issue with the expense. I was recently stuck in Florida unable to get home because of Irma and the damage to airports etc. I ran out while I was in the US.
Normally US pharmacists will not fulfil a non-US prescription and I would have to see a doctor to get a new one but emergency regulations let me have a month's prescription. The pharmaceutical companies had Bush's permission to charge whatever they pleased.
So maybe people were being diagnosed as schizophrenics rather than having a brain inflammation because of the greed of the drug companies and the desire of insurance companies to put profits before health? Is this not a sick society? The book was an ok read.
Medical mystery solved. Pretty girl goes back to work and becomes celebrated author. It could have been better. The author could have collaborated with the brilliant doctor who diagnosed her to present a proper check list of symptoms and of tests to be done, so that other people might have a better chance of diagnosis. For this, it's just three stars.
I'm going back to Florida next week just for a little break from this awful post-Irma third-world living. If I move there, it would be cheaper for me to fly up to the Caribbean every other month to get the prescription than to get it in the US. View all 13 comments. Sep 29, Jonathan Ashleigh rated it it was ok Shelves: When you read you enter another world, and — as someone who is uncomfortable with even the idea apparently of care giving — entering the world of hospitals for the majority of this book was painful for me.
The part where she interviews John Walsh was probably the only part that I found truly enjoyable. The first When you read you enter another world, and — as someone who is uncomfortable with even the idea apparently of care giving — entering the world of hospitals for the majority of this book was painful for me. The first half of the book plays like a mystery as to what is wrong with her and then midway through you find out what it is and the rest of the book describes the recovery where she incessantly wonders if she will ever be back to normal and fears what others think of her.
View all 5 comments.
Mar 26, J. Sutton rated it really liked it. Losing big chunks of your memory is a bit like losing who you are or who you thought you were.
Because of a rare condition, Susannah Cahalan comes close to losing both her life and sanity before making a recovery. What I found most interesting about the recovery; however, is the question of whether we've come to the other end of the rabbit hole and are still who we think we are.
How can we tell? Cahalan relies on friends and family to tell her she is who she was. This wasn't the focus of the sto Losing big chunks of your memory is a bit like losing who you are or who you thought you were. This wasn't the focus of the story, but it intrigued me because how can anyone outside of ourselves know if our personality, our intelligence, our way of looking at the world has been altered.
View all 4 comments. Apr 15, Siew rated it it was amazing. Wonderful, wonderful book. I'm a neurologist, and it's amazing to see a book written from a patient's perspective, especially one with a such a good outcome. The book progresses from the starting of the disease process and right up to the recovery stage. It's unnerving to read about the psychotic episodes, the complex partial seizures, the generalised seizures and ultimately, the catatonia.
It must have been very frightening for both the author and her loved ones to witness all of those events u Wonderful, wonderful book.
It must have been very frightening for both the author and her loved ones to witness all of those events unfolding. Scientifically, the book is well-researched, and I love how the medicals terms are explained without jargons.
I particularly love the part where the author describes how IVIGs are produced. That being said, I doubt the significance of the visual neglect as shown with the clock face drawing, and it was written as if the visual neglect led to the diagnosis of autoimmune encephalitis.
I guess, perhaps, the visual neglect counts as 'focal neurology' -- hard evidence that something's wrong with the 'hardware' i. This book truly highlights that doctors should always be aware that there are organic possibilities to consider before bouncing so-called psychotic episodes over to the psychiatrist. I truly hope that the thousands and thousands of patients with NMDA-R antibody encephalitis and their relatives would find comfort in this book, and that they come across brilliant and compassionate neurologists who would champion their plight.
On the final note, I'm glad for all the wonderful work that Dr Dalmau has done in the field of autoimmune encephalitis, and the author's recovery is testament to how well patients with the same condition could fare.
Feb 21, Sagagirl rated it it was ok. I found this book troubling. Not because of the medical mystery -- that was the most interesting of all. By her own account, she cannot describe what it felt like to have her brain be on fire.
The book says she uses journalistic techniques to piece together. And yet these tidbits drop in without much sense of how they were discovered except for the case of the videota I found this book troubling. And yet these tidbits drop in without much sense of how they were discovered except for the case of the videotapes in the epilepsy ward.
There are some reproductions of notes she scribbled and some doctors' notes, but the book felt remarkably lacking in insight. The Syrian doctor who made the diagnosis is interesting; we get some, but not much. In the absence of a more straightforward journalistic accounting, and in the absence of our sympathies we don' get to meet Cahalan prior to her paranoia, so we don't have any baseline , I wanted the book to be reflective, philosophical about the state of madness, about what creates people's sense of their own mind, about paranoid.
None of that happened. I found myself reading to finish, rather than reading to enjoy. Much disappointment, as this seems very much a book I'd delight in. View all 10 comments. Nov 01, Kelli rated it liked it Shelves: I am the perfect audience for this book: I put off reading this one for a good long time because I was afraid I could save a life with this information!
I listened to the audio, which felt a little flat. It is impressive to consider that the author had to do so much investigative reporting to write her own story simply because she didn't remember it, but the combination of the I am the perfect audience for this book: Perhaps I'm asking too much. The story was good but it read very heavy on information and light on emotions and recovery. I will say that it is nothing short of a miracle that this author is here and able to write.
I hope her life is one of gratitude and daily joy. Apr 29, LeAnne rated it liked it Shelves: It might not be the sexiest of subjects, but I really have a thing for neurology. How our billions of brain cells and their chemistry function is still a great mystery, but also toss in immune responses that have gone haywire, and there are complexities here that are beyond fascinating when unraveled. This is the June selection for one of my book clubs, otherwise it is unlikely that this memoir would have drawn me in, but I did enjoy it.
One of my teenagers was born over three months preterm, and It might not be the sexiest of subjects, but I really have a thing for neurology. One of my teenagers was born over three months preterm, and having a science background, I acquainted myself on basic pre-natal neurology. I needed to understand how spending his third trimester outside of the womb and being injured daily with IV needles, heel sticks, etc was different from being protected in utero.
After all that reading 16 years ago, I'm a confirmed nut for brain stuff. Yeah, no - not quite a zombie.. As the title and publisher's blurb tells you, this is the story of a young woman who came down with a rare inflammation of one hemisphere of her brain - probably caused by some sort of environmental trigger That the inflammation was even found was in itself a rarity in that the symptoms that went along with it were extremely similar to schizophrenia.
Had she not had affluent parents to advocate for her and very good health insurance, her story might have ended quite differently.
She mentions the insurance coverage a bit toward the end, but I kept wondering throughout the entire book about those with lesser resources. She did report the possibility that people who are living with schizophrenia or even autism actually might not have that neurological disorder, but be suffering from inflammation instead. Sobering thought.
Brain on Fire: My Month of Madness by Susannah Cahalan
A pretty, 24 year old white girl who works as a reporter in NYC and has highly educated, affluent, and tenacious parents is more likely to find a miracle diagnosis and treatment plan than your average guy. The story was interesting, but missed some potential. The writing was a touch redundant, but then again, it is pretty good for someone her age and who has overcome brain issues.
The content and message were great - the delivery was okay. As an aside, many years ago when I was in elementary school and came home with chicken pox, I transmitted the illness to my 13 year old sister. For a few days, her symptoms shadowed mine, but she suddenly started raving with high fever. She leapt onto the bed, jumping and snarling - almost animal-like. When my petite grandmother went to soothe her, my sister knocked her to the floor and seemed, well, kinda psychotic.
Brain on Fire
When the paramedics arrived, they gave her a sedative and loaded her onto a gurney that they carried down the stairs from our shared bedroom. I never saw her again. The chicken pox had mutated into encephalitis, and her immune response went into overdrive. She was brain dead after just a day but was kept alive so her organs could be harvested for another child.
Why did the encephalitis not hit my brain but did so hers? Immune responses and pathogens and neurology I'm thrilled beyond words that the young author was able to recover as well as she did and was able to write this book. May her good health continue!
Nov 23, Pamela rated it it was amazing Shelves: I started this book last night, and couldn't put it down until I finished it this morning. I know her story all too well as I've been in a similar dark place myself. Aphasia, myoclonus, amnesia, jemais vu, hyperesthesia, allodynia, hemiparesis, paresthesia, cognitive impairment, impaired executive function, depersonalization, neuropsychological assessments, hemiplegic, acephalgic -- words that began to define my life just last year. Her story is a remarkable one, but as a journalist, I believe sh I started this book last night, and couldn't put it down until I finished it this morning.
Her story is a remarkable one, but as a journalist, I believe she downplayed the emotions that this kind of brain sickness evokes. The fear that comes with not remembering, of losing your cognitive abilities -- unable to read, write, make decisions, follow instructions.
The defeat from inconclusive tests, doctors with no answers, even doubting your psychological health. The utter loss of self, of what makes you YOU. Wondering if you'll ever be "you" again, mourning the loss of who you used to be. Finally the celebration, that turning point, the triumph when you overcome your obstacles to write that first article again or in my case pass that exam. But really, can anyone accurately describe those feelings?
Fortunately for both of us, the slope of the line was up. But without those genius doctors to pinpoint a diagnosis, to prescribe the right treatment, without the strength of family and friends to stick with us through it all, would we have shared the same outcome?
Like Susannah, I worry about those that are less fortunate, those that fall through the cracks. I appreciate how hard it must have been for her to relive it all in order to put her story out there, and I am grateful for the number of people she has helped as a result.
Sep 10, Po Po rated it did not like it. This review has been hidden because it contains spoilers. To view it, click here. The first half went like this, "what's wrong with me? I'm going crazy" restated in about five thousand ways.
Then midway through the book we finally find out SC has NMDA-receptor autoimmune encephalitis, which is sometimes misdiagnosed as schizophrenia or schizoaffective disorder in SC's case. I really wish the story wasn't presented as a Mystery Diagnosis or an episode of House. Just let us know from the beginning what it is you suffered from and let the story unfold from there. The second half! The second half of the book discussed her recovery. It was an agonizing read, with these two questions rehashed over and over again: Just ughhhhh.
Phenomenal - undoubtedly the best non-fiction book I have read so far this year. This a non-fiction book in which Susannah Cahalan has documented a month of complete horror for herself and her family - a month when she went from being a completely 'normal' 24 year old woman to being strapped onto a gurney in a hospital with doctors and nurses contemplating admitting her to a psychiatric ward. It began with flu like symptoms which slowly evolved into constant paranoia - she experienced seizures bu Phenomenal - undoubtedly the best non-fiction book I have read so far this year.
It began with flu like symptoms which slowly evolved into constant paranoia - she experienced seizures but the doctors kept telling her to quit drinking, that drinking too much and working too hard was her problem. It got to the point where she believed her own father was an imposter and had battered her step-mother to death.
This was when she was finally admitted into a hospital, only for a month of fear and exhaustion to take over - the doctors couldn't work out what was wrong with her Susannah's brain was on fire, it was slowly shutting off and destroying everything that made her who she was. How were they to save her? This book blew my mind - it had me completely sucked in the whole way through and I had to keep reminding myself that all of this was TRUE.